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7.3. HEALTH AND FOOD SCIENCES

              BIOBANKS AND ANIMAL CORE FACILITIES RESEARCH INFRASTRUCTURE GROUP


















        Presentation of the RI group
        Hungarian biobank networks have altogether 35 registered members, all licensed by the State Public Health and Medical
        Officer Service. Two universities’ biobank networks have adopted an operational policy approved by the Senate. One
        biobank network is a member of the BBMRI ERIC. Currently, in the framework of projects co-funded by the Structural
        Funds, several research groups and RIs are being established to join the Biobanks and animal core facilities RI group.

        Biobanks provide services for basic and applied research at universities, and statistics for feasibility tests in the prepa-
        ration of clinical trials related to rare diseases. Biobanks with genomics databases support ongoing research projects by
        identifying population-specific genetic variants. The data structures of individual biobanks are extremely varied which
        prevents interoperability between biobank networks.

        Nationally, 7 animal core facilities have been identified within the Life Sciences Working Group. These include central
        animal core facilities at 5 universities and animal testing activities at 2 universities coordinated by 3 large animal core
        facilities.



        National coordinator of the RI group:                    Background information
        Semmelweis University                                    The number of members and the central regulation of operation
                                                                 vary by university biobank network. Not all Hungarian biobanks
        Contact: Mária Judit Molnár                              have joined the BBMRI ERIC, and not all of them have a Senate
        Email: molnar.mariajudit@med.semmelweis-univ.hu          approved operational policy in place. The establishment of the
        Website: http://semmelweis.hu/genomikai-medicina/        MOLMEDEX Biobank is currently in progress, and it will belong
                                                                 to the Biobanks RI group. Most institutes of the Hungarian
        Partners:                                                Academy of Sciences operate a central animal core facility. DE and
        Biobanks: DE Biobank Network (4 members); PTE Biobank Network; SE   SE have grouped animal housing and care tasks into 3-3 core fa-
        Biobank Network (15 members); SZTE Biobank Network (15 members)   cilities.
        Animal core facilities: DE Animal Core Facility; ELTE Central Animal
        Core Facility; MTA KOKI Central Animal Core Facility; MTA SZBK   Aim of the RI group
        Central Animal Core Facility; PTE Central Animal Core Facility; SE;   One of the main development directions of the RI group is to har-
        SZTE Central Animal Core Facility                        monise biobank activities in Hungary (harmonisation of standard
                                                                 operations and data to be collected) and provide quality assurance
        ESFRI connection: ELIXIR; BBMRI-ERIC; ECRIN-ERIC         for Hungarian biobanks. Another goal is to connect all domestic
                                                                 SRIs with the BBMRI ERIC, and to involve the biobank networks
        Status of the RI group: under implementation             of MOLMEDEX members in MOLMEDEX research projects.
                                                                 As a long-term objective, biobank databases should be made com-
                                                                 patible with each other. This primarily requires digital technology
                                                                 developments, which in turn would also make it possible to in-
                                                                 crease the openness with a uniform nationally visible biobank
                                                                 database. The storage and visibility of genomic research data in a
                                                                 national database would strongly support domestic genomics re-
                                                                 search.


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